Sciendo: Volume 7 (2020): Issue 1 (January 2020)
By Thomas Hughes, Mikkel Brok-Kristensen, Yosha Gargeya, Anne Mette Worsøe Lottrup, Ask Bo Larsen, Ana Torres-Ortuño, Nicki Mackett and John Stevens
Navigating uncertainty: an examination of how people with haemophilia understand and cope with uncertainty in protection in an ethnographic study
This is a study published by The Journal of Haemophilia Practice that used ethnographic research methods to investigate how people with “haemophilia understand and cope with uncertainty around their protection in their everyday life.”
Read the full article here.
“He's a normal kid now”: an ethnographic study of challenges and possibilities in a new era of haemophilia care
This is a study published by The Journal of Haemophilia Practice that used ethnographic research methods to “explores notions of ‘normality’ in the experience of haemophilia across generations.”
Read the full article here.
Treating for stability: an ethnographic study of aspirations and limitations in haemophilia treatment in Europe
This is a study published by The Journal of Haemophilia Practice that used ethnographic research methods to explore treatment culture in light of improvements in approaches to treatment and their “potential impact on the range of possibilities in the lived experience of haemophilia”
Read the full article here.
“What more can we ask for?”: an ethnographic study of challenges and possibilities for people living with haemophilia
This is a study published by The Journal of Haemophilia Practice that used ethnographic research methods to "explore the everyday life of people with haemophilia, including their beliefs and experiences related to their condition, their treatment, the challenges they face, and their ways of managing their condition."
Read the full article here.
[Banner image by National Cancer Institute via Unsplash]